Highlights
- •The transition of children with chronic conditions from pediatric clinics to adult clinics is a challenging process and describing the experiences of young adult patients with multiple sclerosis in pediatric clinics and their experiences in the transition to adult clinics allows for the definition of comprehensive, individualized and transitional nursing interventions.
- •Considering that the transition from child care to adult care, a natural process, is a part of the care in pediatric clinics, the establishment of transition monitoring and counseling centers and the provision of counseling and education services for adolescents with chronic diseases and for their parents is extremely important for the sustainability of care for all MS services, especially in the center where our study was conducted.
Abstract
Background
The aim of this study was to evaluate the experiences of patients aged 18–24 years
who were diagnosed with multiple sclerosis before the age of eighteen, during the
transition from pediatric care to adult care.
Methods
This research was in the type of phenomenological qualitative research. Focus group
interviews were conducted between December 2020 and October 2021 with seventeen participants
who had been diagnosed with multiple before the age of eighteen, aged 18–24, voluntarily
having agreed to participate in the study. The views of the participants were analyzed
with Maxqda Plus v10 data analysis software, and thematic coding was created by the
researchers.
Results
Of the participants, 58.9% were female, 76.5% had their first attack after the age
of 13, and it was determined that 64.7% of them took oral tablets for therapeutic
purposes. As a result of the content analysis; four thematic codes emerged: (a) Perceptions
of the Illness and Pediatric Clinic Before Transition, (b) Perceptions of the Disease
and Adult Clinic After Transition to the Adult Clinic, (c) Expectations from the Clinic
They Received Service from During Their Childhood, (d) Expectations from the Clinic
They Used in Adulthood.
Conclusion
This study revealed that individuals with multiple sclerosis did not receive any medical
care regarding the transition from pediatric clinics to adult clinics. Describing
the experiences of young adult patients with multiple sclerosis in pediatric clinics
and their experiences in the transition to adult clinics allows for the definition
of comprehensive, individualized and transitional nursing interventions.
Keywords
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Article info
Publication history
Published online: August 20, 2022
Accepted:
August 14,
2022
Received in revised form:
June 14,
2022
Received:
May 8,
2022
Identification
Copyright
© 2022 Elsevier B.V. All rights reserved.
