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Research Article| Volume 56, 103290, November 2021

Improving the detection and treatment of depression in Australians with multiple sclerosis: A qualitative analysis

  • Assunta Hunter
    Affiliations
    Disability and Health Unit, Centre for Health Equity, the Melbourne School of Population and Global Health, the University of Melbourne, Parkville, Australia
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  • Claudia H. Marck
    Affiliations
    Disability and Health Unit, Centre for Health Equity, the Melbourne School of Population and Global Health, the University of Melbourne, Parkville, Australia
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  • Ernest Butler
    Affiliations
    Department of Neurology, Monash Medical Centre, Monash Health, Clayton, Australia

    Department of Neurology, Frankston Hospital, Peninsula Health, Frankston, Australia

    Medicine Monash Health, School of Clinical Sciences, Faculty of Medicine, Nursing and Health Sciences, Monash University, Clayton, Australia

    Frankston Neurology, Frankston, Australia
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  • Michelle Allan
    Affiliations
    Department of Neurology, Monash Medical Centre, Monash Health, Clayton, Australia

    Department of Neurology, Frankston Hospital, Peninsula Health, Frankston, Australia

    Medicine Monash Health, School of Clinical Sciences, Faculty of Medicine, Nursing and Health Sciences, Monash University, Clayton, Australia

    Frankston Neurology, Frankston, Australia
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  • Karen-Leigh Edward
    Affiliations
    Her Heart Limited, Melbourne, Australia

    Department of Health Sciences, Swinburne University, Melbourne, Australia
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  • Andrew Giles
    Affiliations
    MS Australia, North Sydney, Australia
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  • Jayashri Kulkarni
    Affiliations
    The Monash Alfred Psychiatry Research Centre, The Alfred and Monash University Central Clinical School, Monash University, Australia
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  • Deepa Rajendran
    Affiliations
    Medicine Monash Health, School of Clinical Sciences, Faculty of Medicine, Nursing and Health Sciences, Monash University, Clayton, Australia

    Frankston Neurology, Frankston, Australia
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  • Sally Shaw
    Affiliations
    Focussed Health Psychology, Blackburn, Australia
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  • Author Footnotes
    1 Twitter: @LisaGrech4
    Lisa B. Grech
    Correspondence
    Corresponding author: Monash University, Clayton, Victoria 3800, Australia.
    Footnotes
    1 Twitter: @LisaGrech4
    Affiliations
    Medicine Monash Health, School of Clinical Sciences, Faculty of Medicine, Nursing and Health Sciences, Monash University, Clayton, Australia

    Department of Health Sciences, Swinburne University, Melbourne, Australia

    Melbourne School of Psychological Sciences, the University of Melbourne, Parkville, Australia
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  • Author Footnotes
    1 Twitter: @LisaGrech4
Published:September 27, 2021DOI:https://doi.org/10.1016/j.msard.2021.103290

      Highlights

      • Depression is not regularly and formally assessed through MS healthcare services.
      • Information about depression in MS and treatment options is required at MS healthcare services.
      • Healthcare and community services collaboration is required to improve mental health management in MS.

      Abstract

      Background

      Depression is common in people with multiple sclerosis (MS), yet often goes undetected, untreated or undertreated.

      Objective

      This qualitative research explored current practices, barriers and facilitators for detection and treatment of depression in Australians with MS.

      Methods

      Participants were 26 people with MS recruited through social media. Participants completed the Centre for Epidemiological Studies Depression-Revised (CESD-R) scale and in-depth telephone or video interviews. Interviews were analysed using framework analysis.

      Results

      Scores measured on the CESD-R proposed 73% of participants were experiencing severe depression symptoms. Participants reported that depression is not regularly and formally assessed through MS healthcare services and they are offered limited information about depression in MS. Barriers to mental health support included recognition of depression, resistance to treatment and limitations of collaborative support between general practitioners and MS healthcare services. Participants expressed a need for open conversations and information about depression during neurology consultations.

      Conclusion

      Based on our findings, improved detection and treatment of depression in people with MS requires: 1) better provision of information about depression for people with MS through healthcare services and community organisations; 2) regular screening and assessment; 3) better healthcare services collaboration to improve management.

      Keywords

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